MS Waikato Trust
Working in the community for the benefit of people with Multiple Sclerosis and other
allied neurological disorders including Huntington's Disease. We currently have 25 HD
MS Waikato Trust
PO Box 146
Client Services Coordinator:
PO Box 146
Tel: (07) 834 4745
Mob (027) 385 5425
Email: Tracy Hobbs
Web site: www.mswaikato.org.nz
HD SUPPORT CO-ORDINATOR
Tracy Hobbs is now the Support Coordinator and her DDI number is (07) 834 4745.
The Society is contracted to Midland Health to provide support to Huntington's families:
home visits if requested|
set up and facilitate Support Group meetings|
a local Society Newsletter to those on mailing list|
in-service in nursing homes|
liaison between other health professionals on behalf of HD clients; occupational therapists,
physiotherapists, dietitians, GPs, specialists, Northern Region Genetic Services|
The Society has 25 HD clients, but when a seminar on 'HD & Dementia" was organised, 340 attended.
Our District and membership stretches from Taumaranui in the south; north through the Waikato
to the Bombay Hills and east to include Thames and the Coromandel Peninsula. Membership is
open to all.
Being affiliated to the National Multiple Sclerosis Society we have access to a large and
up-to-date data base of information about Multiple Sclerosis and allied neurological disorders.
National office has access to information on the latest developments and treatments world wide.
Though people with Multiple Sclerosis (MS) account for 80% of our 270 clients, the balance
have allied neurological conditions such as Anklosing Spondylitis, Arachnoiditis Myodil,
Cerebal Palsy, Frierreichs Ataxia, Huntington's Disease, Motor Neurone Disease (MND), Muscular
Dystrophy (MD), Myalgic Encephalomyetlitis (ME), Parkinson's Disease and Vasculitis. Half of
these clients are in Hamilton City and the remainder scattered throughout the district.
We currently support people with MS, HD, Arachoiditis Myodil, Guillian-Barre Syndrome and
Myalgic Encephalopathy(ME)/ Chronic Fatigue(CFS).
We provide a wide range of efficient services to our many clients who select those services
they require. We endeavour to meet their needs in the shortest possible time.
The Support Co-ordinator has empathy with the client, is conversant with policies and has the
knowledge to access resources that best suit the needs of the current situation through
assessment of needs, facilitation of entitlements, advocacy, counselling and referals. As well,
the Support Co-ordinator provides information and education and the promotion of the Society to
clients and families, carers, the medical profession, funding providers and the community. Due
to the on-going service provided, the Social Worker is well placed to pick up the changing needs
of the client through the course of the neurological condition.
Is provided on behalf of clients, individually and collectively, when appropriate or necessary.
The Support Co-ordinator maintains an on-going liaison with Community Health Services, home care
providers, counselling agencies, physiotherapists, occupational therapists, doctors,
neurologists and Income Support.
Additional support for clients is achieved through Support Groups, which are currently
established in Hamilton, Te Awamutu and Thames.
We recruit and train volunteers to assist with the goals of our organization.
Seminars & Social Activities:
The work of Support Groups is further enhanced by seminars and other social activities that
are arranged for members of the Society.
We run exercise and yoga classes in Hamilton.
Publicity, Education and Information:
Much from our national office, including handbooks covering different aspects of neurological conditions.
We have a library containing information on a wide range of topics included in books,
videos, DVDs and CDs.
Producing regular issues of our newsletter is an important way of conveying information to
our clients and members who also receive our National Newsletter.
Of clients is paramount and small grants given in the case of special need or emergency.
In Hamilton assistance with transport is available through subsidized fares under the Total
Mobility taxi scheme.