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Issue 100, March 2008


Hello everyone and welcome to the 100th issue of the Huntington's News.

It all began at the 1984 Huntington's Disease Seminar when, as noted in the first newsletter, quote…

"It was agreed that a National Newsletter would be a good thing. It would be a way of sharing and caring, and sending out information about research work being done in this field. It would also be a way of encouraging awareness among social workers and doctors, of the disease."

And so the HD Newsletter was born, with a name change in March 1999 to Huntington's News

In the first issue items were taken from newsletters produced by our sister organisations in Australia, England, and Holland.

To date there have been at least, 423 Articles, 59 Personal Stories, 11 Book Reviews and 23 Poems

I would like to give a big THANKYOU to all the people who have been associated with the production of Huntington's News since it began in 1985. And this includes you, the readers.

I would especially like to thank Judith Baker and Dorothy Tortell for their support and guidance, all the Social Worker/Field Workers throughout New Zealand who have contributed to the Newsletter by submitting their Regional News, Stephanie Drew who does the layout and liaises with TruPrint Ltd and last but not least Graeme and Elaine Bradley who do all the distribution.

I hope that you the readers find the Newsletter helpful. The Editorial Board always enjoys receiving articles from you and getting your feedback

We look forward to bringing to you the latest news, research findings, your stories and letters.

Glenys Shepherd

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Appreciation and thanks must go to Judy Lyon for compiling the wealth of information available
on this site, and to Graham Taylor for maintaining the original site for so long.

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