Home page
About the New Zealand HD Associations
Living with Huntington's Disease
Publications, press releases, conference information
Selected articles from HDA newsletters
2009 Newsletters
2008 Newsletters
2007 Newsletters
2006 Newsletters
2005 Newsletters
News, articles and links to items of interest in HD research
New Zealand contacts
Acknowledgement and Disclaimer

4 Nov 2017

Issue 100, March 2008

Presymptomatic Testing of Minors for Huntington's Disease - New Zealand

McGill University, (Montreal QC, Canada) invites you to participate in an online survey.

The purpose of this survey is to examine the attitudes that members of the Huntington Disease Association have toward pre-symptomatic genetic testing for Huntington's Disease (HD) in minors (under 18 years of age). Pre-symptomatic genetic testing is a method for identifying persons carrying the HD gene before symptoms appear.

Members of the Canadian Huntington's Disease Society and the Australian Huntington's Disease Association are also participating in the study.

We welcome participants of all ages but must stress that minors (under 18 years of age) must give assent and have parental consent to complete the questionnaire. Each person should complete their own questionnaire independently, particularly those less than 18 years of age, so that the questionnaire results will be valid.

For more information and/or to complete the survey, please go to this link.

Publisher's note: The above link is not currently working. It will be sorted out as soon as possible.

Back to the top | Back to Contents


Appreciation and thanks must go to Judy Lyon for compiling the wealth of information available
on this site, and to Graham Taylor for maintaining the original site for so long.

Home | About | Information | Resources | Newsletters | Research | Contacts | Disclaimer |
Original content HD Associations of New Zealand