Issue 100, March 2008
Presymptomatic Testing of Minors for Huntington's Disease - New Zealand
McGill University, (Montreal QC, Canada) invites you to participate in an online survey.
Publisher's note: The above link is not currently working. It will be sorted out as soon as possible.
The purpose of this survey is to examine the attitudes that members of the Huntington Disease Association have toward pre-symptomatic genetic testing for Huntington's Disease (HD) in minors (under 18 years of age). Pre-symptomatic genetic testing is a method for identifying persons carrying the HD gene before symptoms appear.
Members of the Canadian Huntington's Disease Society and the Australian Huntington's Disease Association are also participating in the study.
We welcome participants of all ages but must stress that minors (under 18 years of age) must give assent and have parental consent to complete the questionnaire. Each person should complete their own questionnaire independently, particularly those less than 18 years of age, so that the questionnaire results will be valid.
For more information and/or to complete the survey, please go to this link.