Huntington's Scene In New Zealand
|Articles taken from September 2000 Huntington's News. The Quarterly Newsletter of the Huntington's Decease Associations of New Zealand|
Book Review of Huntingtons and Me Reviewed by Brendon Monk
A Guide for Young People
by Alison Gray
Huntingtons Disease Association (Wgtn) Inc.
61 pages, $12-00 plus postage.
Huntingtons and Me is a guide for young people who live in a family where someone has Huntingtons Disease. It provides those young people with an honest account of what Huntingtons disease is, how it affects families, and strategies that they can use to help them accept, and cope with the situation they find themselves in.
Huntingtons Disease is a genetically inherited disease. For a young person to understand the cause of the disease and their chances of getting it, they must first have a basic understanding of the science of genetics. Huntingtons and Me provides a lucid explanation of the relevant aspects of genetics and leaves the reader with a clear understanding of the factors determining whether somebody will get Huntingtons Disease. It would be a very useful resource for year 11 science students as it provides a real-life application of the genetic theory that they learn as part of their course.
As well as providing young people with knowledge about Huntingtons Disease, Huntingtons and Me also serves the equally important purpose of making them aware that they are not alone in what they are experiencing. Quotes, poems and stories from young people who have a parent with Huntingtons Disease, provide a poignant account of what it is like to be in that situation. While being honest in its portrayal of Huntingtons Disease the book also reassures the reader that coping with Huntingtons Disease is not all negative. In particular it emphasises the strength and courage that HD families gain.
Huntingtons and Me is essential reading for any young person in an HD family, someone who has a friend in an HD family, or anybody who wishes to better understand this disease.
Brendon Monk Science Teacher