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4 Nov 2017

18th International meeting of the World Federation of Neurology Research Group on Huntington’s Disease

(28 to 31 August 1999)
and

13th International Meeting of the International Huntington Association

(28 August to 2 September 1999)
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The last morning was about ethical issues, a committee was formed at the business meeting to deal with these, insurance issues, which are still causing some problems, and reports from new associations. Sue Watkin (UK) who is president of the IHA then gave a summary of the conference. In the afternoon I was part of a group which visited Hullenoord Nursing Home where we met several of the HD patients as well as the director and several staff members. Very well laid out and organised as well as in a very nice setting.

 

I would like to add that as the only NZ delegate at this conference, my third, I felt really privileged to be able to attend on your behalf, to interact with so many caring positive people, both professional and family members like myself, and to be able to pass so much of it on to you. There were 164 members at the WFN meeting, including four from New Zealand, and they all really care about all of us and are working and hoping for a solution just as hard as we are.


Shirley Elliott-Galloway
Christchurch HD Assn Committee Member.



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Appreciation and thanks must go to Judy Lyon for compiling the wealth of information available
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