Huntingtons Disease is an inherited neurological disorder. It is also, as one of the contributors to this book points out "a cow of a disease".
Caused by a particular gene,it can affect both males and females.It leads to changes of behavior and personality and over a period of time , most suffers develop uncontrollable movements. The illness can last 10-25 years and the stress on sufferers and their caregivers is immense.
The 18 interviews in this book document the distress associated with HD as well as the compassion and courage shown by suffers, care givers and HD families. Health professionals talk about new developments in research and offer some hope for the future.
The quiet honesty of these interviews is a testament to the resilience of the human spirit. This book is essential reading for anyone who has any connection with HD and for health professionals who want to understand what it is like to live with or care for someone with a neurological disorder.
Alison Gray is an experience writer and researcher who lives in Wellington (NZ) and works as a Freelance social Researcher
Copies can be obtained from:
Huntington's Desease Assocation (Wellington)
PO Box 54 094
Cost $17.00(NZ) plus p&p