Young people affected by Huntington's need to have correct and up to
date information as early as possible young people want to know the truth and this must
be provided in such a way that it is informative and factual,as well as supportive.With
predictive testing available to those eighteen and over, the young must have this
information early so that they have time to consider the implications of testing,not only
on themselves, but also their family and friends.
This books provides the latest information about HD and offers strategies for coping with
the immediate and long-term challenges. It is soundly based on the experiences of young
people themselves. Some have just learned that HD is in their family , others are
considering predictive testing them selves. Some have already experienced the loss of a
The Book shows that the experience of coping with HD is not all negative. Young People with
HD families gain strength and courage. They learn to face the present and future with love,
acceptance,compassion and hope. This book is an essential guide for that journey for both
young people and adults.