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An overview of the web site with links

7 Sep 16

Links to other HD sites

Please contact us if you have any sites to add

The HD Lighthouse
The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.

HOPES (Huntington's Outreach Project for Education, at Stanford)
HOPES is a team of faculty and undergraduate students at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to the public. Our goal is to survey the rapidly growing scientific literature on HD and to consolidate this information into a coherent, reliable web resource that reflects current scientific understanding of HD. We seek to provide accurate, helpful information about the causes of HD, existing treatment options, and recent advances in HD research. To date, HOPES resources have reached out to families in over 47 countries.

Huntington's Disease Association Auckland Inc
Information on the services, events and the funding of the Auckland Association in the Auckland and Northland region.

JHD Families Website (UK)
This website was inspired by the experience of a group of families that attended a Juvenile Huntington's Disease Family Event 2006 organised by the HDA, UK. The site is brand new, under development, and much content remains to be added. Currently there is a photo gallery of the JHD Event and a Discussion Forum.

International Huntington Association (IHA)

International HD Support Groups - contact addresses.

Huntington Society of Canada
On this site you will find information about the Huntington Society of Canada, Huntington disease, the many ways the Society works to support the needs of persons with HD and their families ...

Australian Huntington Disease Association (Inc) WA
On this site you will find information about the association and information about HD, including a range of Fact Sheets covering many aspects of HD.

Kansas University Medical Centre
This page provides many links to HD information and Associations around the world, and is a comprehensive resource.

United Kingdom
The HDA is a UK registered charity which supports people affected by Huntington's disease (HD). We also provide information and advice to families, friends and health care professionals whose task it is to support Huntington's disease families.

Ireland
The Huntington's Disease Association of Ireland: (HDAI) providing consultation, information and individualised support to those diagnosed with Huntington's disease (HD), their families and their health care team.

If you find other sites that you would recommend, please contact JSites (see below)..


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Appreciation and thanks must go to Judy Lyon for compiling the wealth of information available
on this site, and to Graham Taylor for maintaining the original site for so long.

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