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Issue 90, September 2005


15-16 October 2005, Ilott Theatre, Wellington Town Hall

0830-0930 Registration
0930-0945 Welcome
0945-1015 Conference Opening: “Human Rights Challenges of the New Genetics”.
Ms Rosslyn Noonan, Chief Human Rights Commissioner
1015-1115 Behavioural Aspects of Huntington’s Disease
Prof Jane Paulsen, Professor of Psychiatry, Neurology, Psychology and Neurosciences, University of Iowa, College of Medicine, USA
1115-1145 Morning Tea
1145-1245 Stem Cells and Huntington’s Disease
Prof Richard Faull, Professor of Anatomy, University of Auckland School of Medicine
1300-1430 Lunch
1430-1530 From bench to bedside: progress towards new treatments for Huntington’s Disease
Dr Peggy Shelbourne, Lecturer in Genetics, University of Glasgow, Scotland
1530-1600 Adapting to change – A caregivers perspective
Pauline Duncan-DeLury
1600-1630 Afternoon tea
1630-1730 Sharing our Experiences – Personal Stories of Huntington’s Disease
Family members and caregivers
1930 Conference Dinner - Renouf Foyer, Michael Fowler Centre
Dinner Speaker, Prof Richard Faull, My Journey with HD
0900-1000 HD and Insurance
Dr Louise Kane, Medical Advisor, Tower Health and Life
1000-1030 Amaryllis House – One Year On
Ms Margaret Simmons, Manager, Amaryllis House, Lower Hutt
1030-1100 Morning tea
1100-1130 Diversional Therapy for Huntington’s Disease
Ms Jane Jackson, Diversional Therapist, Amaryllis House
1130-1230 PREDICT-HD : A Research Update and Opportunities to Participate
Prof Jane Paulsen, and Ms Elizabeth Penziner, Recruitment and Retention Coordinator Predict-HD, Huntington’s Disease Center of Excellence, University of Iowa, USA
1230-1315 Panel Discussion
Main speakers reply to questions received during the Conference
1315-1330 Closing Remarks
1330 Lunch

For registration forms and further information, contact:

Carol Dring, Conference Secretary
Huntington’s Disease Association (Wellington) Inc
28a James Cook Drive, Whitby 6006, Porirua

Tel: (04) 234 7742

Email: cdring.wellingtonhda@xtra.co.nz

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Appreciation and thanks must go to Judy Lyon for compiling the wealth of information available
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