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HD Publications

Printed media and online resources


Genes & Generations
Living with Huntington's Disease

The 18 interviews in this book document the distress associated with Huntington's disease as well as the compassion and courage shown by sufferers, care givers and Huntington's families. Health professionals talk about new developments in research and offer some hope for the future.

Huntington's and Me
A Guide for Young People

This book acknowledges what young people experience and how they feel. It provides information about HD and offers strategies for coping with immediate and long-term challenges. It is soundly based on the experiences of young people themselves.

Handbook on Health and Nutrition
for those with Huntington's Disease

The Huntington's Disease Association (Wellington) Inc. ... recognizes the special health and nutritional needs of its members and strives to provide them with the best and latest advice and information. This handbook was complied from published and unpublished information which exists in New Zealand and oversease, as well as the invaluable knowledge provided by HD families.


From the Huntington Society of Canada
Personal Perspectives on Genetic Testing
for Huntington Disease

A collection of stories compiled and edited by Susan M. Cox, Ph.D.
67 pages in .pdf format (Acrobat Reader required)

A Physician's Guide to the Management of Huntington Disease
Adam Rosenblatt, M.D., Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, M.D.

64 pages in .pdf format (Acrobat Reader required)

Genetic Testing for Huntington Disease
34 pages in .pdf format (Acrobat Reader required)

Caregiver's Handbook for Advanced-Stage Huntington Disease
66 pages in .pdf format (Acrobat Reader required)

Understanding Behaviour in Huntington Disease:
A practical guide for individuals, families, and professionals coping with HD

80 pages in .pdf format (Acrobat Reader required)

Loss and Grief, Coping with the Death of a Loved One
and with Other Losses Related to Huntington's Disease

31 pages in .pdf format (Acrobat Reader required)

Juvenile HD:
A Resource for Families, Health Professionals and Caregivers

24 pages in .pdf format (Acrobat Reader required)


Appreciation and thanks must go to Judy Lyon for compiling the wealth of information available
on this site, and to Graham Taylor for maintaining the original site for so long.

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