HD Publications
Printed media and online resources
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Books
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Genes & Generations
Living with Huntington's Disease
The 18 interviews in this book document the distress associated with
Huntington's disease as well as the compassion and courage shown by sufferers,
care givers and Huntington's families. Health professionals talk about new
developments in research and offer some hope for the future.
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Huntington's and Me
A Guide for Young People
This book acknowledges what young people experience and how
they feel. It provides information about HD and offers strategies for coping
with immediate and long-term challenges. It is soundly based on the experiences
of young people themselves.
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Handbook on Health and Nutrition
for those with Huntington's Disease
The Huntington's Disease Association (Wellington) Inc. ...
recognizes the special health and nutritional needs of its members and strives
to provide them with the best and latest advice and information. This handbook
was complied from published and unpublished information which exists in New Zealand
and oversease, as well as the invaluable knowledge provided by HD families.
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Booklets
From the Huntington Society of Canada
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Personal Perspectives on Genetic Testing
for Huntington Disease
A collection of stories compiled and edited by Susan M. Cox, Ph.D.
67 pages in .pdf format (Acrobat Reader required)
Download
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A Physician's Guide to the Management of Huntington Disease
Adam Rosenblatt, M.D., Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, M.D.
64 pages in .pdf format (Acrobat Reader required)
Download
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Genetic Testing for Huntington Disease
34 pages in .pdf format (Acrobat Reader required)
Download
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Caregiver's Handbook for Advanced-Stage Huntington Disease
66 pages in .pdf format (Acrobat Reader required)
Download
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Understanding Behaviour in Huntington Disease:
A practical guide for individuals, families, and professionals coping with HD
80 pages in .pdf format (Acrobat Reader required)
Download
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Loss and Grief, Coping with the Death of a Loved One
and with Other Losses Related to Huntington's Disease
31 pages in .pdf format (Acrobat Reader required)
Download
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Juvenile HD:
A Resource for Families, Health Professionals and Caregivers
24 pages in .pdf format (Acrobat Reader required)
Download
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