Coping with Huntington’s.

  • Through our Association the Nurse Advisor in your area can provide on-going support and advice. They can identify what services may be available and how to access them.

  • A Support Needs Assessment can be undertaken to identify the help and support required. This may include home help, respite care, meals on wheels and many other services.

  • The services of a physiotherapist, occupational therapist, speech -language therapist and dietician can be arranged for both advice and support.

  • Maintain good dental hygiene and keep regular appointments with the dentist.

  • Take regular exercise such as walking, yoga and swimming.

  • Ask your GP about available medication to help relieve some of the symptoms.

  • Ask to be assessed for the Total Mobility Scheme which will provide taxis at a reduced rate and void the need for driving.

  • Visit your local Work & Income NZ office to discuss applying for the appropriate benefits.

  • Seek advice from the local Genetic Services.

  • Surround yourself with supportive people.

  • Take advantage of the services of your local HD Nurse Advisor. Their knowledge is wide and valuable.